Monday, January 13, 2014

EndoMarch2014: Week 1

Over the past year, I've witnessed an incredible desire to bring awareness to endometriosis.  This desire should be prevalent, considering this disease is way more common than you may think.

Since I got diagnosed in February of 2013 (we're almost at the 1 year anniversary!), I've been on quite the journey.  I've been in contact with some amazing women who are not only supportive, but incredibly knowledgeable as well.  They don't just have the ability to comfort, they possess the knowledge to know when to tell you that going to the doctor isn't giving in.  This journey has also led me to drift away from some people that I used to be close with.  It's showing me some peoples' true colors.  But, if these people were meant to be in my life, they would still be here.  Endo has shown me who really cares, and who isn't willing to put up with the complications of being friends with someone who has a chronic illness.  A huge positive outcome of this journey is how closely I now know my body.  Endo has made me pay such close attention to my body that I feel so in tune with it.  I know what's causing the physical feelings, and I'm working on learning how to control them to whatever extent I can.

What is EndoMarch2014?  It's a much needed awareness event.  It's a time for sufferers, doctors, nurses, family, friends, and supporters to all come together on one day to being awareness to this illness.  This needs to stop being an unheard of condition, and there needs to stop being a taboo towards talking about a woman's reproductive system.  This needs to stop being a condition that, on average, takes 10 years to diagnose.  Can you imagine, suffering for 10 whole years without even knowing what's wrong with you?  Being told that it's all in your head?  Endo doesn't just cause physical pain from the internal bleeding and scar tissue formation.  It can also cause anxiety, depression, and a wealth of other mental health issues, because one person can only be told their crazy so many times.  It's like you're being punished for being ill, as if you didn't feel as though you were being punished already.

This event is taking place on March 13th, all across the globe.  In the US, we will be meeting in Washington DC.  We are gathering to bring awareness to this disease, to bring awareness to the need of better medical training, to bring awareness to the necessity of more education.  We're gathering to make people aware.

We need to be heard, and I am so proud to be a part of this.

2 comments:

  1. It's going to be awesome! Can't wait!

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